So once again we were making plans to leave the hospital, they were talking either tomorrow or Tuesday, but then Mary had 2 more small, "localized" siezures this morning. So we are going to finally do a 24 hour EEG. We have asked for this twice before, and had they done it, we would have certainly caught one of these many seizures on EEG and video. We are a little frustrated by that....
They are also going to up the dose of VPA a little quicker to try to control the seizures. We also got them to start the L-carnitine, based on Dr. Swoboda's recommendations.
More to follow...
5 comments:
I can only imagine the frustration. I'm sure you are all anxious for Mary to get home, hopefully it will happen soon.
I first heard your story from Heather Moris, I'm awed at what I read about Mary, what a fighter and gracious to boot! Praying for Mary and you all. Love in Jesus from Australia
Hope everything is going okay. We are thinking of you!
I don't understand most of the medical stuff, but I do understand how much you all love each other. And I also know we love you and God loves you and we're all praying for Mary.
I am just getting caught up today - I check in about each month. I cried reading the scary (and remarkable) story and events that have been happening. Big hugs and prayers from Texas... Regan
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