Sunday, March 29, 2009
Nathaniel plays goalie:
A picture of Mary cheering:
Mary holding her ball:
Mary and Nathaniel after the big win! She is SO proud!
Here is a picture of the Finding Nemo cake that daddy made:
And here is a video of Mary blowing our her candle:
Wednesday, March 25, 2009
This is the sign as you enter the zoo!
Getting ready to go in:
This zoo had one of the most impressive reptile collections I've ever seen! The snakes we all very active (must have been feeding time), usually you see snakes just coiled up in the corner. Mary liked the snakes!
Yes, they ACTUALLY has a Domestic House Cat on display! We thought this was HILARIOUS!
Here was their other cat:
It was a huge Bengal Tiger. Mary thought it was the coolest. When it would go into it's cage, Mary would say: "Tiger, where are you????"
Kate being silly:
Kate, Mary and Jackson:
Mary says 'hi' to a little goat.
When Mary saw the donkey, she said "Hi Eeyore!"
Mary also LOVED the porcupine. (I think she watches too much "My Friends Tigger and Pooh"!!!
Jackson feeling right at home with the Monkeys!!!
Getting ready to leave, everyone had a good time!!
Mary looking cool in her shades! When we got back out to the parking lot she said, "Dadda, I want to go home"
Tuesday, March 24, 2009
Friday, March 20, 2009
Mary was very excited to get home to Jackson and Sam. She kept asking in the hospital, "can I pleeeeeease go home dada? pleeeeease?" It was so heartbreaking to tell her no, we had to stay one more night. Finally on Saturday we decided that she was doing well enough to come home and that we could manage it from home. We've continued to do chest PT treatments on her around the clock, but we've been able to extend the time between them, from every 3 hours, to every four, and now we are down to just 4-5 treatments a day. It was just so hard to wake Mary up in the middle of the night and do a treatment on her, she would look at you like, "why are you waking me up, I was sleeping SO good!"
Another bit of exciting news, we were able to get a loaner "chest-vest" from the Manufacturer to use at home for Mary. We've been trying to get this for a long time, but it has been denied by insurance. We are in the process of appealing it, but since we used it in the hospital, Kate called the company and asked to borrow one and they said "OK". Mary is starting to get used to it, it is a little scary at first, but it works really well for her. It is hard to believe that such a simple machine costs over $15,000!!!
Anyway, we are all glad to be home. Especially Mary! Here is a picture of her after her bath the day after we got home:
Just look at that smile!!
Saturday, March 14, 2009
So we will keep watching her and keep doing the treatments every 3 hours. Its going to be a long night. . . .
Friday, March 13, 2009
If you would like to send Mary an e-card here is the link:
Her room number is: 7189
Thanks again for all of the prayers, we know that Mary is in God's caring hands and only a miracle could have cleared her lung so quickly. All of the doctors and respiratory therapists were amazed!
Thursday, March 12, 2009
Mary is doing much better this morning and her spirits are good. Last night she kept saying, "can I go home, please dada please..." It was so sad.
Anyway, we are hoping to not be here too long. Please keep her in your prayers!
Sunday, March 8, 2009
Keep your hands free while wearing this tie-clip, omnidirectional electret, which comes complete with 3.3 feet of cord and a “357” button battery.
Great sound quality from a tiny micropho
Pros: Lightweight, Great Sound Quality, Simple Use
Describe Yourself: Parent
Primary use: Personal
We use this tiny microphone in conjunction with the Mini Audio Amplifier to amplify our daughter's voice. She has a disease that makes her breath support very weak, and therefore she is very quiet. It is very portable and we take it everywhere. It works great so we can hear her in noisy situations!
Only bad thing, the plastic tie clip broke after about a week of use, so I just replaced it with a balloon clip (see picture)