Wednesday, January 19, 2011

Kate to run the NYC 1/2 Marathon to help raise funds for SMA research!

After running my first half marathon last year I decided to run another one…this one with a higher purpose – to raise money for SMA Research through Families of SMA!  And, I have decided to ask my friends and family help me reach my donation goal of $1,000!
Here is the deal:
 Step 1. YOU donate some money. (Donate at:
 Step 2. I will run the NYC 1/2 Marathon on March 20th - only 13.1 Miles.
 Step 3. Together we raise awareness and support for SMA.
Yep, it is that easy!

Raising money for the Families of SMA is important to me because my daughter has this terrible disease and I want to see a cure found and the end of children losing their life way too soon!  Mary is a happy, bright, intelligent three year old who loves life, loves to laugh, and loves to tell a good joke!  I feel like this is the least I can do to help find a cure for a disease she battles every day!  She is my pride and joy and I would go to the moon and back for her!  I am sure you will agree that helping me reach my goal is totally worth it!
 Donating through this website is easy, fast, and totally secure. This is also the most effective way to support my fundraising efforts for Families of Spinal Muscular Atrophy.
Spinal Muscular Atrophy (SMA) is the number one genetic killer of infants. It is an often fatal disease that destroys the nerves controlling voluntary movement, such as, crawling, walking, head and neck control, even swallowing. One in 6,000 babies born is affected with SMA. There are 7.5 million Americans that carry the gene that causes SMA.
Families of SMA makes a difference every day because of your support. Together, in 2011, we will accomplish the following: -Expand our investment in critical Spinal Muscular Atrophy research to grow the drug and clinical pipeline to increase our likelihood of finding a treatment and cure.
-Provide direct support to hundreds of families with newly diagnosed children by sending them packets of important information and pieces of critical equipment.
-Provide services to more than 70% of SMA families in the United States.
-Host the nation's largest gathering of those affected by SMA and the researchers working towards a cure at the 2010 Annual SMA Conference, bringing together hundreds of families and researchers from around the world to share ideas and hope for the future.
If you encounter a problem with a link, please visit my The 2011 NYC Half Marathon Home Page at  NOTE: If link looks broken, cut and paste ENTIRE link into address bar. If you are presented with a "Find A Fund-raiser" page, enter my first and last name and click on "Submit". Then click "View Fund-raiser" by my name in the results list to go to "My The 2011 NYC Half Marathon Home Page."

Thank you,

Tuesday, January 4, 2011

Mary home and doing well!

Hi everybody!! I am so sorry for not updating Mary's blog! Mary was able to come home from the hospital a few days before Christmas! We have been home and she has been doing ok. We didn't even realize the blog still said she was in the hospital until Mary's teacher was surprised to see her in school on Monday!
Mary is still fighting this cold and has a lot of secretions at night, basically we have to suction her every 30 minutes to one hour throughout the night, so we don't get much sleep.
Please pray that everyone continues to stay healthy!

Thanks to everyone for the Christmas cards and well wishes while we were in the hospital!