Mary's Trip to the Mountains!!!

Hey everyone! I know its been a while since we've posted anything, so here are some pictures of our recent trip to Monterey, VA. We went to visit Jan and Cathy, who are our friends Wendy and Robert's parents. They have a great place that was very secluded in the mountains. It was great to get out of our toxic rental house and get some fresh air. Mary felt much better up there, even though mom was nervous about going over the 4 mountain ranges to get there.

Mary enjoyed picking flowers.

We went for a nice walk in the Big Valley and saw lots of cows, sheep, goats, deer and other animals.

Mary and Mom at the Confederate Breastworks on Shenandoah Mountain.
Check out Mary's cool new shades!
Mary and Dad enjoying the nice weather!Hope you all had a great week! We are finally getting moved into our new house this weekend (hopefully) this whole move has been such a mess.

Mary in the News

Hi Everyone -

Sorry we haven't posted in a few days. First off, Mary is home from the hospital. She came home Friday, but then had another ambulance ride on Saturday morning as she dropped her oxygen to 50 and briefly stopped breathing. Ryan and I worked on her and were able to bring her back. Once at the hospital her lungs were clear and she was smiling and talking. We think she's having a hard time adjusting to the new climate and with allergies. We continue to be aggressive with her airway clearance and are praying she will shake whatever it is very soon.

Mary is a little star. A week ago a news crew from Fox 17 in Nashville came out to the house (well, our friends house because we were about to move) and shot a story on Mary and her fundraiser. To view it click on the link below:

http://www.fox17.com/newsroom/top_stories/vid_1524.shtml

It aired on the morning show this morning and will air again on the 9 p.m. news. We're not sure how long it will be on their website.

Thanks again for all the prayers and support for Mary. Will update more when we can and add a few pictures of the little pumpkin!

Kate

New Home and New Hospital

Hey Everyone! I know it has been a few weeks since we've updated Mary's Blog. We've been in the middle of moving to Charlottesville, Virginia. Ryan drove last Thursday to meet the movers on Friday at the new house, and then flew back Saturday to drive with Kate and Mary on Monday. We made the trip in one day and Mary did great in the car. When we got here we all got a little bit congested, like we were waking up in the morning congested. We don't know if it is from allergies or from a little bug, but Mary is definitely taking it the hardest. She has had a lot of mucus and secretions the last few mornings and throughout the day and this morning after her morning treatment and feeding she had a little crash. Her oxygen saturation dropped to 82% so daddy put supplemental oxygen into her BiPap, but that only helped a little and she was having a lot of trouble breathing so we had to call the ambulance to come and take her to the hospital. That was very scary for us, since it is the first time we had to do that and in a new place and all. But the ambulance crew was great and after a scary ride to the ER (her sats dropped to low 60's on the trip) we got her there an they got a large mucus plug out of her at the hospital. After that she got rapidly better and we are just in the ICU now for monitoring. She tested negative for flu and RSV so we are hoping it is something that will pass quickly and we can go home.

Please continue to keep little Mary in you prayers and we know you all do! We are looking forward to her race in May and hope to raise lots of money and awareness for Families of SMA.
Hope to see some of you there!!

Ryan and Kate