Hey Everyone! I know it has been a few weeks since we've updated Mary's Blog. We've been in the middle of moving to Charlottesville, Virginia. Ryan drove last Thursday to meet the movers on Friday at the new house, and then flew back Saturday to drive with Kate and Mary on Monday. We made the trip in one day and Mary did great in the car. When we got here we all got a little bit congested, like we were waking up in the morning congested. We don't know if it is from allergies or from a little bug, but Mary is definitely taking it the hardest. She has had a lot of mucus and secretions the last few mornings and throughout the day and this morning after her morning treatment and feeding she had a little crash. Her oxygen saturation dropped to 82% so daddy put supplemental oxygen into her BiPap, but that only helped a little and she was having a lot of trouble breathing so we had to call the ambulance to come and take her to the hospital. That was very scary for us, since it is the first time we had to do that and in a new place and all. But the ambulance crew was great and after a scary ride to the ER (her sats dropped to low 60's on the trip) we got her there an they got a large mucus plug out of her at the hospital. After that she got rapidly better and we are just in the ICU now for monitoring. She tested negative for flu and RSV so we are hoping it is something that will pass quickly and we can go home.
Please continue to keep little Mary in you prayers and we know you all do! We are looking forward to her race in May and hope to raise lots of money and awareness for Families of SMA.
Hope to see some of you there!!
Ryan and Kate